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My 13th Annual SCDAA Warrior Walkathon Fundraising Page

Krystal Folk-Nagua

Krystal Folk-Nagua

My name is Krystal, and I am a Sickle Cell Warrior.
 

For many years, I never said those words out loud.
 

Growing up, there was little conversation about sickle cell disease. I only knew it as the condition that caused unbearable pain, kept me out of school, separated me from friends, led to countless hospitalizations and blood transfusions, and created a lifelong fear of needles. It was something that made me feel different and alone.
 

Sickle cell disease is often called an invisible disability because many people cannot see the challenges we face every day. Yet those challenges are real. Individuals living with sickle cell disease frequently encounter barriers in healthcare, education, employment, and daily life. Too often, our pain is questioned, our experiences are dismissed, and our needs are misunderstood.
 

I know this firsthand.
 

I have been accused of seeking drugs when I was simply seeking relief from a pain crisis. I have had healthcare providers dismiss my concerns rather than listen to what my body was telling me. I have felt limited by my illness and unsure where to turn for support. These experiences are not unique to me. They are shared by countless members of the sickle cell community.
 

Despite affecting millions of people worldwide, sickle cell disease remains underfunded, under-researched, and widely misunderstood.
 

That must change.
 

As both a social worker and a person living with sickle cell disease, I understand the importance of addressing inequities in healthcare and ensuring that every individual receives compassionate, knowledgeable, and dignified care. I also know that meaningful change requires investment.
 

Your support helps fund education, advocacy, research, community programs, and resources that improve the lives of individuals and families affected by sickle cell disease. It helps raise awareness, combat stigma, and expand opportunities for people living with this chronic illness to thrive rather than simply survive.
 

Research saves lives.
 

Education saves lives.
 

Advocacy changes lives.
 

Together, we can create a future where people living with sickle cell disease are heard, supported, and treated with the respect they deserve. We can help ensure that no one faces this journey alone.
 

Thank you for standing with the sickle cell community! Your generosity fuels hope, drives progress, and helps build a more equitable future for all  
 

Every donation makes a difference.
 

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